Overview

Weathering the Storm: Living Fully with PSPby Ben Lazarus A powerful, honest, and uplifting memoir for anyone touched by Progressive Supranuclear Palsy (PSP), rare neurological diseases, or the challenges of living with adversity. When a sudden diagnosis of PSP upended Ben Lazarus's life as a successful accountant, husband, and father, he found himself navigating a relentless storm-one that strips away movement, speech, and independence. In this deeply personal account, Ben shares his journey from misdiagnosis and denial to acceptance and adaptation, offering practical advice, emotional insight, and hope for patients, caregivers, and families alike. Inside you'll find: Clear, accessible facts about PSP and its progression, written for patients and families-not medical professionals. The author's own story: from global traveller to wheelchair-bound writer, and the emotional and practical adaptations that made life meaningful again. Tools and strategies for living well with PSP, including home adaptations, nutrition, exercise, and emotional resilience. Honest reflections on faith, dignity, humour, and the importance of attitude in the face of terminal illness. Voices of caregivers and fellow patients, highlighting the shared struggles and unexpected gifts found in community. A comprehensive appendix and resource guide for further reading, support organisations, and practical help. Why read this book? It is not a medical textbook, but a companion for anyone facing the uncertainty of PSP or similar conditions. It is filled with raw honesty, dark humour, stubborn hope, and the profound beauty that emerges when life is stripped to its essentials. Whether you are newly diagnosed, a caregiver, a medical professional, or simply seeking inspiration, this book offers light and companionship on a hard road. Publishing and Charity: Profits of the book which I make will be donated to a PSP charity and an audit trail will be available for anyone who wants to review it.

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