The Right to Know and the Right Not to Know: Genetic Privacy and Responsibility

Author:   Ruth Chadwick ,  Mairi Levitt (Lancaster University) ,  Darren Shickle (University of Leeds)
Publisher:   Cambridge University Press
Edition:   2nd Revised edition
ISBN:  

9781107429796


Pages:   228
Publication Date:   04 September 2014
Format:   Paperback
Availability:   Manufactured on demand   Availability explained
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The Right to Know and the Right Not to Know: Genetic Privacy and Responsibility


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Author:   Ruth Chadwick ,  Mairi Levitt (Lancaster University) ,  Darren Shickle (University of Leeds)
Publisher:   Cambridge University Press
Imprint:   Cambridge University Press
Edition:   2nd Revised edition
Dimensions:   Width: 15.20cm , Height: 1.30cm , Length: 22.60cm
Weight:   0.340kg
ISBN:  

9781107429796


ISBN 10:   110742979
Pages:   228
Publication Date:   04 September 2014
Audience:   Professional and scholarly ,  Professional and scholarly ,  Professional & Vocational ,  Professional & Vocational
Format:   Paperback
Publisher's Status:   Active
Availability:   Manufactured on demand   Availability explained
We will order this item for you from a manufactured on demand supplier.

Table of Contents

Introduction: the right to know and the right not to know: seventeen years on Darren Shickle; Part I. Philosophical and Legal Issues: 1. The philosophy of the right to know and the right not to know Ruth Chadwick; 2. Autonomy Jorgen Husted; 3. Privacy and the right not to know: a plea for conceptual clarity Graeme Laurie; Part II. Issues in Genetics: 4. Biobanks and feedback: the right to know what other people know Kadri Simm; 5. Suspects, victims and others: producing and sharing forensic genetic knowledge Robin Williams and Matthias Weinroth; 6. Empowered by choice? Mairi Levitt; 7. DIY: the right to know your own genome Barbara Prainsack; 8. Genomics, inconvenient truths, and accountability Jeantine Lunshof and Ruth Chadwick; Part III. Emerging Issues: 9. The right to know and the right not to know in the era of neoliberal biopolitics and bioeconomy Henk ten Have; 10. The parental love argument against 'designing' babies: the harm in knowing that one has been selected or enhanced Anca Gheaus; 11. The inescapability of knowing and inability to not know in the digital society Richard Watermeyer; 12. The press and the public interest Joachim Allgaier; 13. The food we eat: the right to be informed and the duty to inform Michiel Korthals.

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Author Information

Ruth Chadwick is Professor of Bioethics at Manchester University and chair of the Human Genome Organisation (HUGO) Committee on Ethics Law and Society. She directed the ESRC Centre for Economic and Social Aspects of Genomics (Cesagen) from 2002 to 2013. Mairi Levitt is a senior lecturer in the Department of Politics, Philosophy and Religion at Lancaster University, where she works in empirical bioethics and researches ethical and social issues in genetics. Darren Shickle is Professor of Public Health at the University of Leeds, where his research interests include public health ethics, public health genetics, ophthalmic public health and HIV and sexual health.

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