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Overview"This newborn may die. That's what the doctors in the Neonatal Intensive Care Unit of Duke Children's Hospital implied. Caden, a beautiful baby boy, was born with something seriously wrong. A normal pregnancy followed by a normal birth unexpectedly led to a questionable survival prognosis. Extensive medical testing eventually revealed a rare genetic muscular disorder, Congenital Fiber Type Disproportion, caused by a mutation and deletion on the RYR-1 gene. In this inspirational memoir, Caden's grandmother describes the days, weeks, and months that follow this devastating diagnosis. Regardless of the outcome, the family commits to facing Caden's uncertain future with faith, hope, love, and courage. Sometimes they will falter; nevertheless, through every challenge, disappointment, and accomplishment, they firmly believe that Caden is ""the perfect child for us.""" Full Product DetailsAuthor: Linda Sprague PappasPublisher: Independently Published Imprint: Independently Published Dimensions: Width: 15.20cm , Height: 0.90cm , Length: 22.90cm Weight: 0.245kg ISBN: 9781731285959ISBN 10: 1731285957 Pages: 162 Publication Date: 11 January 2019 Audience: General/trade , General Format: Paperback Publisher's Status: Active Availability: In stock We have confirmation that this item is in stock with the supplier. It will be ordered in for you and dispatched immediately. Table of ContentsReviewsAuthor InformationTab Content 6Author Website:Countries AvailableAll regions |