The Bleeding Disease: Hemophilia and the Unintended Consequences of Medical Progress

Author:   Stephen Pemberton (Assistant Professor, New Jersey Institute of Technology)
Publisher:   Johns Hopkins University Press
ISBN:  

9781421401157


Pages:   400
Publication Date:   09 September 2011
Recommended Age:   From 17
Format:   Hardback
Availability:   In stock   Availability explained
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The Bleeding Disease: Hemophilia and the Unintended Consequences of Medical Progress


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Full Product Details

Author:   Stephen Pemberton (Assistant Professor, New Jersey Institute of Technology)
Publisher:   Johns Hopkins University Press
Imprint:   Johns Hopkins University Press
Dimensions:   Width: 15.20cm , Height: 3.10cm , Length: 22.90cm
Weight:   0.680kg
ISBN:  

9781421401157


ISBN 10:   1421401150
Pages:   400
Publication Date:   09 September 2011
Recommended Age:   From 17
Audience:   Professional and scholarly ,  Professional and scholarly ,  Professional & Vocational ,  Postgraduate, Research & Scholarly
Format:   Hardback
Publisher's Status:   Active
Availability:   In stock   Availability explained
We have confirmation that this item is in stock with the supplier. It will be ordered in for you and dispatched immediately.

Table of Contents

Preface Acknowledgments Introduction: Hemophilia as Pathology of Progress 1. The Emergence of the Hemophilia Concept 2. The Scientist, the Bleeder, and the Laboratory 3. Vital Factors in the Making of a Masculine World 4. Normality within Limits 5. The Hemophiliac's Passport to Freedom 6. Autonomy and Other Imperatives of the Health Consumer 7. The Mismanagement of Hemophilia and AIDS Conclusion: The Governance of Clinical Progress in a Global Age Notes Index

Reviews

The author's research was impeccable and he writes in a very readable manner. * Book Bargains and Previews * This book holds wide appeal for both lay readers and medical professionals who are interested in the history of medicine, the ability of technology development to produce both good and bad outcomes, and the influence of societal perceptions on health policy and technology development. -- Bruce L. Evatt * Journal of Clinical Investigation * A thoughtful, intelligent, and informative contribution to the history of hemophilia and the shaping of safety policies in blood use. * Choice * Few stories in modern medicine oscillate as dramatically between triumph and tragedy as the history of hemophilia. The Bleeding Disease combines classic history of science with sociological analysis to tell this story in a style that should appeal to both medical and lay audiences. -- Katherine A. High * Nature Medicine * Excellent. -- Chris Feudtner * Bulletin of the History of Medicine * A well-researched, readable, and useful history of hemophilia in the United States, contextualized within its scientific, social, and economic milieu... Pemberton's book will serve as an inspiration and a cautionary tale about medical 'progress' writ large. -- Jacalyn Duffin * Canadian Bulletin of Medical History * A great read for everyone interested in scientific development, technological progress and the management of disease. * The Good Care Guide * Provides a thorough and detailed history of hemophilia. -- William G. Rothstein * History of Science Society * A really good review of the historical developments of medicine within a particular clinical condition. -- Ibadete Fetahu * Nursing Times * A great read for everyone interested in scientific development, technological progress and the management of disease. * Nursing Standard * A well-researched and compelling history of hemophilia. This book will undoubtedly be a standard for future histories in this area. -- Richard Nollan * Journal of the History of Medicine and Allied Sciences * A meticulously researched and consistently argued work of scholarship... The Bleeding Disease is a significant contribution to the history of biomedicine. -- Peter Hobbins * Metascience * The Bleeding Disease makes an important contribution to the history of American biomedicine in the twentieth century. -- Sophie Chauveau * Medical History * The Bleeding Disease is a welcome addition to the literature of that crisis and the history of haemophilia that preceeded it... This Faustian story has been told before; Pemberton enriches he telling not by seeking to blame the companies, the doctors or the regulators but by emphasising the desire for haemophiliacs to have normal lives. It is a dream shared by sufferers of any disease that have made the transition from deadly to chronic from diabetes to AIDS. * Social History of Medicine * Pemberton has done an admirable job of showing us the vast potential, and substantial limitations, of medical science to solve health problems... This book is strongly recommended for those studying the history of medicine, the history of medical technology, and the sociology of medicine. -- Stephen Inrig * American Historical Review *


The author's research was impeccable and he writes in a very readable manner. * Book Bargains and Previews * This book holds wide appeal for both lay readers and medical professionals who are interested in the history of medicine, the ability of technology development to produce both good and bad outcomes, and the influence of societal perceptions on health policy and technology development. -- Bruce L. Evatt * Journal of Clinical Investigation * A thoughtful, intelligent, and informative contribution to the history of hemophilia and the shaping of safety policies in blood use. * Choice * Few stories in modern medicine oscillate as dramatically between triumph and tragedy as the history of hemophilia. The Bleeding Disease combines classic history of science with sociological analysis to tell this story in a style that should appeal to both medical and lay audiences. -- Katherine A. High * Nature Medicine * Excellent. -- Chris Feudtner * Bulletin of the History of Medicine * A well-researched, readable, and useful history of hemophilia in the United States, contextualized within its scientific, social, and economic milieu... Pemberton's book will serve as an inspiration and a cautionary tale about medical 'progress' writ large. -- Jacalyn Duffin * Canadian Bulletin of Medical History * A great read for everyone interested in scientific development, technological progress and the management of disease. * The Good Care Guide * Provides a thorough and detailed history of hemophilia. -- William G. Rothstein * History of Science Society * A really good review of the historical developments of medicine within a particular clinical condition. -- Ibadete Fetahu * Nursing Times * A great read for everyone interested in scientific development, technological progress and the management of disease. * Nursing Standard * A well-researched and compelling history of hemophilia. This book will undoubtedly be a standard for future histories in this area. -- Richard Nollan * Journal of the History of Medicine and Allied Sciences * A meticulously researched and consistently argued work of scholarship... The Bleeding Disease is a significant contribution to the history of biomedicine. -- Peter Hobbins * Metascience * The Bleeding Disease makes an important contribution to the history of American biomedicine in the twentieth century. -- Sophie Chauveau * Medical History * The Bleeding Disease is a welcome addition to the literature of that crisis and the history of haemophilia that preceeded it... This Faustian story has been told before; Pemberton enriches he telling not by seeking to blame the companies, the doctors or the regulators but by emphasising the desire for haemophiliacs to have normal lives. It is a dream shared by sufferers of any disease that have made the transition from deadly to chronic from diabetes to AIDS. * Social History of Medicine * Pemberton has done an admirable job of showing us the vast potential, and substantial limitations, of medical science to solve health problems... This book is strongly recommended for those studying the history of medicine, the history of medical technology, and the sociology of medicine. -- Stephen Inrig * American Historical Review *


The author's research was impeccable and he writes in a very readable manner. Book Bargains and Previews 2011 This book holds wide appeal for both lay readers and medical professionals who are interested in the history of medicine, the ability of technology development to produce both good and bad outcomes, and the influence of societal perceptions on health policy and technology development. -- Bruce L. Evatt Journal of Clinical Investigation 2011 The Bleeding Disease, by historian Stephen Pemberton, combines classic history of science with sociological analysis to tell this story in a style that should appeal to both medical and lay audiences. -- Katherine A High Nature Medicine 2011 A thoughtful, intelligent, and informative contribution to the history of hemophilia and the shaping of safety policies in blood use. Choice 2012 The book holds wide appeal for both lay readers and medical professionals who are interested in the history of medicine, the ability of technology development to produce both food and bad outcomes, and the influence of societal perceptions on health policy and technology developments. -- Bruce L. Evatt Journal of Clinical Investigation 2011 Few stories in modern medicine oscillate as dramatically between triumph and tragedy as the history of hemophilia. The Bleeding Disease combines classic history of science with sociological analysis to tell this story in a style that should appeal to both medical and lay audiences. -- Katherine A. High Nature Medicine


The author's research was impeccable and he writes in a very readable manner. Book Bargains and Previews 2011 This book holds wide appeal for both lay readers and medical professionals who are interested in the history of medicine, the ability of technology development to produce both good and bad outcomes, and the influence of societal perceptions on health policy and technology development. -- Bruce L. Evatt Journal of Clinical Investigation 2011 A thoughtful, intelligent, and informative contribution to the history of hemophilia and the shaping of safety policies in blood use. Choice 2012 Few stories in modern medicine oscillate as dramatically between triumph and tragedy as the history of hemophilia. The Bleeding Disease combines classic history of science with sociological analysis to tell this story in a style that should appeal to both medical and lay audiences. -- Katherine A. High Nature Medicine Excellent. -- Chris Feudtner Bulletin of the History of Medicine 2012 A well-researched, readable, and useful history of hemophilia in the United States, contextualized within its scientific, social, and economic milieu... Pemberton's book will serve as an inspiration and a cautionary tale about medical 'progress' writ large. -- Jacalyn Duffin Canadian Bulletin of Medical History 2012 A great read for everyone interested in scientific development, technological progress and the management of disease. The Good Care Guide 2012 Provides a thorough and detailed history of hemophilia. -- William G. Rothstein History of Science Society 2012 A really good review of the historical developments of medicine within a particular clinical condition. -- Ibadete Fetahu Nursing Times 2012 A great read for everyone interested in scientific development, technological progress and the management of disease. Nursing Standard 2012 A well-researched and compelling history of hemophilia. This book will undoubtedly be a standard for future histories in this area. -- Richard Nollan Journal of the History of Medicine and Allied Sciences 2012


The author's research was impeccable and he writes in a very readable manner. Book Bargains and Previews 2011 This book holds wide appeal for both lay readers and medical professionals who are interested in the history of medicine, the ability of technology development to produce both good and bad outcomes, and the influence of societal perceptions on health policy and technology development. -- Bruce L. Evatt Journal of Clinical Investigation 2011 A thoughtful, intelligent, and informative contribution to the history of hemophilia and the shaping of safety policies in blood use. Choice 2012 Few stories in modern medicine oscillate as dramatically between triumph and tragedy as the history of hemophilia. The Bleeding Disease combines classic history of science with sociological analysis to tell this story in a style that should appeal to both medical and lay audiences. -- Katherine A. High Nature Medicine Excellent. -- Chris Feudtner Bulletin of the History of Medicine 2012 A well-researched, readable, and useful history of hemophilia in the United States, contextualized within its scientific, social, and economic milieu... Pemberton's book will serve as an inspiration and a cautionary tale about medical 'progress' writ large. -- Jacalyn Duffin Canadian Bulletin of Medical History 2012 A great read for everyone interested in scientific development, technological progress and the management of disease. The Good Care Guide 2012 Provides a thorough and detailed history of hemophilia. -- William G. Rothstein History of Science Society 2012 A really good review of the historical developments of medicine within a particular clinical condition. -- Ibadete Fetahu Nursing Times 2012 A great read for everyone interested in scientific development, technological progress and the management of disease. Nursing Standard 2012 A well-researched and compelling history of hemophilia. This book will undoubtedly be a standard for future histories in this area. -- Richard Nollan Journal of the History of Medicine and Allied Sciences 2012 A meticulously researched and consistently argued work of scholarship... The Bleeding Disease is a significant contribution to the history of biomedicine. -- Peter Hobbins Metascience 2012 The Bleeding Disease makes an important contribution to the history of American biomedicine in the twentieth century. -- Sophie Chauveau Medical History 2012


The author's research was impeccable and he writes in a very readable manner. Book Bargains and Previews 2011 This book holds wide appeal for both lay readers and medical professionals who are interested in the history of medicine, the ability of technology development to produce both good and bad outcomes, and the influence of societal perceptions on health policy and technology development. -- Bruce L. Evatt Journal of Clinical Investigation 2011 The Bleeding Disease, by historian Stephen Pemberton, combines classic history of science with sociological analysis to tell this story in a style that should appeal to both medical and lay audiences. -- Katherine A High Nature Medicine 2011


Author Information

Author Website:   http://history.njit.edu/people/pemberton.php

Stephen Pemberton is an associate professor in the Federated Department of History at the New Jersey Institute of Technology and Rutgers University, Newark. He is coauthor of The Troubled Dream of Genetic Medicine: Ethnicity and Innovation in Tay-Sachs, Cystic Fibrosis, and Sickle Cell Disease, also published by Johns Hopkins.

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Author Website:   http://history.njit.edu/people/pemberton.php

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