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OverviewDrawing on a range of historical and contemporary examples—from doctors' early medical reports to YouTube videos—Shelley Z. Reuter shows that true agency in genetic decision-making can be exercised only from a place of cultural inclusion. Choice in this context is in fact a kind of unfreedom—a moral duty to act that is not really agency at all. Full Product DetailsAuthor: Shelley Z. ReuterPublisher: University of Minnesota Press Imprint: University of Minnesota Press Dimensions: Width: 14.00cm , Height: 3.80cm , Length: 21.60cm Weight: 0.363kg ISBN: 9780816699957ISBN 10: 081669995 Pages: 288 Publication Date: 17 August 2016 Audience: College/higher education , Postgraduate, Research & Scholarly Format: Hardback Publisher's Status: Active Availability: Temporarily unavailable  The supplier advises that this item is temporarily unavailable. It will be ordered for you and placed on backorder. Once it does come back in stock, we will ship it out to you. Table of ContentsContents Introduction: A Critical Historical Sociology of Disease Part I. Pathologizing the Other 1. Diagnosing the Genuine “Jewish Type”: Medical Racialism and Anti-Immigration Legislation in the United States 2. Governing Disease: Cultivating the Will to Health in Jewish Immigrants to the United Kingdom Part II. Imag(in)ing Difference 3. “Plainer Than Words Can Describe”: Medical Portraiture and the Visualization of a Jewish Disease 4. The Unethics of Looking at Disease–Disability: Online Representations of Tay-Sachs Part III. Paradoxical Biocitizenship 5. The Right to Be Responsible: Agency and Contemporary Carrier Screening Conclusion: Freedom, Exclusion, and Genetic Decision Making Acknowledgments Notes Bibliography IndexReviewsTesting Fate illustrates how diseases become racialized, how racializing them supports political projects, and how the medical profession has been instrumental in racial formation. Dorothy Roberts, author of Fatal Invention: How Science, Politics, and Big Business Re-create Race in the Twenty-first Century Shelley Z. Reuter offers a thoughtful, thorough, and sophisticated analysis of themes of modern biocitizenship and belonging refracted through a historical case study of Tay-Sachs disease. Jonathan Kahn, Hamline University As she tells the fascinating and important story of Tay-Sachs disease, Shelley Reuter skillfully reminds us of the tight links connecting our concepts of disease to visions of belonging and otherness, selfhood and social responsibility. Steven Epstein, author of Inclusion: The Politics of Difference in Medical Research Author InformationShelley Z. Reuter is associate professor of sociology at Concordia University. She is the author of Narrating Social Order: Agoraphobia and the Politics of Classification. Tab Content 6Author Website:Countries AvailableAll regions |
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