Testing Baby: The Transformation of Newborn Screening, Parenting, and Policymaking

Author:   Rachel Grob
Publisher:   Rutgers University Press
ISBN:  

9780813551357


Pages:   290
Publication Date:   01 September 2011
Format:   Hardback
Availability:   In Print   Availability explained
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Testing Baby: The Transformation of Newborn Screening, Parenting, and Policymaking


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Full Product Details

Author:   Rachel Grob
Publisher:   Rutgers University Press
Imprint:   Rutgers University Press
Dimensions:   Width: 15.20cm , Height: 2.00cm , Length: 22.90cm
Weight:   0.595kg
ISBN:  

9780813551357


ISBN 10:   0813551358
Pages:   290
Publication Date:   01 September 2011
Audience:   Professional and scholarly ,  Professional & Vocational
Format:   Hardback
Publisher's Status:   Active
Availability:   In Print   Availability explained
This item will be ordered in for you from one of our suppliers. Upon receipt, we will promptly dispatch it out to you. For in store availability, please contact us.

Table of Contents

Acknowledgments Chapter 1. Saving Babies, Changing Lives Chapter 2. Diagnostic Odysseys, Old and New: How Newbord Screening Transforms Parents' Encounters with Disease Chapter 3. Specters in the Room: Parenting in the Shadow of Cystic Fibrosis Chapter 4. Encounters with Expertise: Parents and Health Care Professionals  Chapter 5. A House on Fire: How Private Experiences Ignite Public Voices Chapter 6. Brave New Worlds: Visible in a Single Drop of Blood? Notes  References Index  

Reviews

Grob provokes the reader to think deeply about a taken-for-granted aspect of the medicalization of reproduction in the United States. --Rayna Rapp, PhD. Testing Women, Testing the Fetus: the Social Impact of Amniocentesis in America


Grob provokes the reader to think deeply about a taken-for-granted aspect of the medicalization of reproduction in the United States. --Rayna Rapp, PhD. Testing Women, Testing the Fetus: the Social Impact of Amniocentesis in America Rachel Grob's timely and insightful analysis explores how families actually experience newborn screening. It will be read with profit by anyone interested in issues raised by medical screening programs generally. --Diane B. Paul The Politics of Heredity: Essays on Eugenics, Biomedicine, and the Nature-Nurtur Testing Baby does what sociology is meant to do--transform our understanding of everyday life, connect the personal to the structural, and challenge our thinking. A rare accomplishment --Barbara Katz Rothman City University of New York Her accessible, Testing Baby, ...may be the start of a differenc kind of policy conversation. --Health Affairs Testing Baby is an excellent book for medical professionals--including physicians, social workers, and genetic researchers--as well as policymakers. A relevant and important contribution that sits at the interface of medical science, reproduction, and parenthood, Grob's work will provoke further reflection regarding the future role of technology and genetic information for the human experience. --World Medical and Health Policy Newborn screening is a most interesting area that impacts each and every individual in countless ways. In this truly inspiring work, Grob has captured what others have not been able to write about the topic. Essential. --Choice Gripping, tragic, cogent, emotional, and haunting, reading through these narrative accounts and Grob's interpretation of them achieves the effect of great sociological monographs. --Contemporary Sociology


Testing Baby does what sociology is meant to do--transform our understanding of everyday life, connect the personal to the structural, and challenge our thinking. A rare accomplishment <br><br>--Barbara Katz Rothman City University of New York (01/01/2011)


Author Information

RACHEL GROB is Scholar in Residence and Director of National Initiatives at the Center for Patient Partnerships (University of Wisconsin-Madison) and Health Advocacy faculty member at Sarah Lawrence College. She is the co-editor of Patients as Policy Actors (Rutgers University Press).

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