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Author:   Rebecca Dresser (Daniel Noyes Kirby Professor of Law; Professor of Ethics in Medicine, Daniel Noyes Kirby Professor of Law; Professor of Ethics in Medicine, Washington University Law)
Publisher:   Oxford University Press Inc
Imprint:   Oxford University Press Inc
Dimensions:   Width: 20.80cm , Height: 2.00cm , Length: 13.70cm
Weight:   0.417kg
ISBN:  

9780190929183

ISBN 10:   0190929189
Pages:   322
Publication Date:   22 November 2018
Audience:   College/higher education ,  Professional and scholarly ,  Postgraduate, Research & Scholarly ,  Professional & Vocational
Format:   Paperback
Publisher's Status:   Active
Availability:   To order  
Stock availability from the supplier is unknown. We will order it for you and ship this item to you once it is received by us.

Table of Contents

"Contents Preface 1 Subject Perspectives: The Missing Element in Research Ethics 2 Personal Knowledge and Study Participation 3 The Everyday Ethics of Human Research 4 The Hidden World of Subjects: Rule-Breaking in Clinical Trials 5 Participants as Partners in Genetic Research 6 Terminally Ill Patients and the ""Right to Try"" Experimental Drugs 7 Embedded Ethics in Developing Country Research 8 Research Subjects as Literary Subjects 9 How to Hear Subjects Index"

Reviews

Some omissions are so obvious it takes a special person to see them. An authority on medical ethics and someone who has suffered and recovered from a serious illness, no one is in a better position than Rebecca Dresser to identify the absence of the research subject's voice in clinical trials. Her sometimes painfully honest and always intellectually acute analysis opens up a new conversation about the way we conduct human experiments. - Jonathan Moreno, David and Lyn Silfen University Professor of Ethics, Perelman School of Medicine, University of Pennsylvania Rebecca Dresser has for years been a leading legal and ethical scholar on human subject research. Building on her own experience as a cancer survivor, her book is a powerful and forceful argument to give human subjects themselves a central role in the research, particularly as new kinds of medical research, as with genetics, come to the fore. She makes her case with a sharp eye for nuance and troublesome dilemmas, adding to the power of the book. - Daniel Callahan, President Emeritus, The Hastings Center Some omissions are so obvious it takes a special person to see them. An authority on medical ethics and someone who has suffered and recovered from a serious illness, no one is in a better position than Rebecca Dresser to identify the absence of the research subject's voice in clinical trials. Her sometimes painfully honest and always intellectually acute analysis opens up a new conversation about the way we conduct human experiments. - Jonathan Moreno, David and Lyn Silfen University Professor of Ethics, Perelman School of Medicine, University of Pennsylvania [P]rovides a thorough review of the ways clinical researchers can ignore the perspectives of research participants, the resulting negative effects, and some of the ways the situation can be improved. - Norman M. Goldfarb is Managing Director of First Clinical Research LLC Much scholarly writing seems like a bare tree festooned with strings of citations. Dresser's argument flows on its own, and the reader can travel on its currents; the references help guide the flowwithout demanding notice. What this accomplishes is straightforward: it makes the book accessible and potentially interesting to many audiences, from institutional review board (IRB) reading groups to students at many levels to clinicians learning to be investigators. -- Nancy M.P King, IRB: Ethics and Human Research, October 2017

Much scholarly writing seems like a bare tree festooned with strings of citations. Dresser's argument flows on its own, and the reader can travel on its currents; the references help guide the flowwithout demanding notice. What this accomplishes is straightforward: it makes the book accessible and potentially interesting to many audiences, from institutional review board (IRB) reading groups to students at many levels to clinicians learning to be investigators. * Nancy M.P King, IRB: Ethics and Human Research, October 2017 * [P]rovides a thorough review of the ways clinical researchers can ignore the perspectives of research participants, the resulting negative effects, and some of the ways the situation can be improved. - Norman M. Goldfarb is Managing Director of First Clinical Research LLC Some omissions are so obvious it takes a special person to see them. An authority on medical ethics and someone who has suffered and recovered from a serious illness, no one is in a better position than Rebecca Dresser to identify the absence of the research subject's voice in clinical trials. Her sometimes painfully honest and always intellectually acute analysis opens up a new conversation about the way we conduct human experiments. - Jonathan Moreno, David and Lyn Silfen University Professor of Ethics, Perelman School of Medicine, University of Pennsylvania Rebecca Dresser has for years been a leading legal and ethical scholar on human subject research. Building on her own experience as a cancer survivor, her book is a powerful and forceful argument to give human subjects themselves a central role in the research, particularly as new kinds of medical research, as with genetics, come to the fore. She makes her case with a sharp eye for nuance and troublesome dilemmas, adding to the power of the book. - Daniel Callahan, President Emeritus, The Hastings Center Some omissions are so obvious it takes a special person to see them. An authority on medical ethics and someone who has suffered and recovered from a serious illness, no one is in a better position than Rebecca Dresser to identify the absence of the research subject's voice in clinical trials. Her sometimes painfully honest and always intellectually acute analysis opens up a new conversation about the way we conduct human experiments. - Jonathan Moreno, David and Lyn Silfen University Professor of Ethics, Perelman School of Medicine, University of Pennsylvania

There is an enormous literature related to research subjects' views and experiences. Dresser has provided a valuable volume drawing on insights from this literature. ... Certainly a book I am happy to recommend. -- Erich von Dietze, Metapsychology Some omissions are so obvious it takes a special person to see them. An authority on medical ethics and someone who has suffered and recovered from a serious illness, no one is in a better position than Rebecca Dresser to identify the absence of the research subject's voice in clinical trials. Her sometimes painfully honest and always intellectually acute analysis opens up a new conversation about the way we conduct human experiments. - Jonathan Moreno, David and Lyn Silfen University Professor of Ethics, Perelman School of Medicine, University of Pennsylvania Rebecca Dresser has for years been a leading legal and ethical scholar on human subject research. Building on her own experience as a cancer survivor, her book is a powerful and forceful argument to give human subjects themselves a central role in the research, particularly as new kinds of medical research, as with genetics, come to the fore. She makes her case with a sharp eye for nuance and troublesome dilemmas, adding to the power of the book. - Daniel Callahan, President Emeritus, The Hastings Center Some omissions are so obvious it takes a special person to see them. An authority on medical ethics and someone who has suffered and recovered from a serious illness, no one is in a better position than Rebecca Dresser to identify the absence of the research subject's voice in clinical trials. Her sometimes painfully honest and always intellectually acute analysis opens up a new conversation about the way we conduct human experiments. - Jonathan Moreno, David and Lyn Silfen University Professor of Ethics, Perelman School of Medicine, University of Pennsylvania [P]rovides a thorough review of the ways clinical researchers can ignore the perspectives of research participants, the resulting negative effects, and some of the ways the situation can be improved. - Norman M. Goldfarb is Managing Director of First Clinical Research LLC Much scholarly writing seems like a bare tree festooned with strings of citations. Dresser's argument flows on its own, and the reader can travel on its currents; the references help guide the flowwithout demanding notice. What this accomplishes is straightforward: it makes the book accessible and potentially interesting to many audiences, from institutional review board (IRB) reading groups to students at many levels to clinicians learning to be investigators. -- Nancy M.P King, IRB: Ethics and Human Research, October 2017

Author Information

Rebecca Dresser has taught medical and law students about legal and ethical issues in biomedical research, end-of-life care, genetics, and related topics since 1983. From 2002-2009, she was a member of the President's Council on Bioethics and from 2011-2015, a member of the National Institutes of Health Recombinant DNA Advisory Committee. She is the author of When Science Offers Salvation (2001), editor of Malignant (2012), and co-editor of The Human Use of Animals (1998, 2nd ed. 2008) all published by Oxford University Press.

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