Overview

"""This book is a reminder that living with a most difficult and painful thing gives us choices. Making the right one makes all the difference. Margaret Kramar has written this story for all the right reasons. And no matter who you are, you will find yourself in these pages."" Maryemma Graham, University of Kansas Distinguished Professor & Founder/Director, Project on the History of Black Writing. Parenting can be a struggle; especially parenting a disabled child. In this flawlessly written memoir, Kramar describes championing her son, diagnosed with Sotos syndrome, through his short life. Searching For Spenser: a Mother's Journey Through Grief examines the experience of loving and losing a child and reminds us that there is a way forward through the pain and suffering. The wounds, although soul deep, do heal allowing a way to live, love, and laugh again. Kramar's memoir offers guidance, wisdom and inspiration. It not only speaks to those who have children with disabilities and those who have lost a child, but also those who seek an amazing and surprising story of redemption and hope. In Searching for Spenser, Kramar explores how she was transformed through the experience of Spenser's life and death. Writing became a creative outlet for her grief and allowed her to share her story with others. ""Star Wars,"" a chapter from Searching for Spenser, appeared in Echoes from the Prairie in 2013; ""The Birthday Party,"" another chapter, appeared in Exceptional Parent magazine in 2008, and a short story about Spenser was anthologized in Reading Lips: And Other Ways to Overcome a Disability published by Apprentice House in 2008. What makes a good parent? What defines success? How do we face loneliness and despair? Kramar searches for the answers to these questions after her son Spenser is diagnosed with Soto syndrome. She is forced to look honestly at her life as a single parent of two sons--one who is disabled, whom she fiercely loves. After she attains success in her career, Margaret eagerly anticipates motherhood. When she gives birth to her second child Spenser, who suffers from developmental delays, she is devastated because her life has centered on achievement. Although Spenser overcomes the gloomy medical prognosis cast at his birth, her husband cannot reconcile his disappointment and begins drifting away from the family. One day she comes home to a house with some of the furniture gone and the bank accounts emptied. After the divorce, Margaret struggles as a single mother. She barely scrapes by, and is lonely and exhausted from working full-time and maintaining a household by herself with two small boys. She meets an interesting man at a dance and is swept up into a passionate romance, but he is reluctant to marry her because he does not want to commit to her children. As his most ardent cheerleader, Margaret encourages Spenser to transcend the arbitrary limits of his disability. Spenser flourishes, emerging as a happy child who loves to act, dance, and draw. One spring day, while the other children are playing, Spenser clings to his mother at the school carnival because he is tired. She takes him to the hospital on a Sunday night, and in a startling turn of events, he dies the following Monday afternoon. After his death, Margaret questions whether she ever really knew her child. She searches for him in the memories of former teachers, relatives and friends, embarking on a journey that takes her beyond the grave, even to a psychic at Lily Dale, while she finds support and solace in the monthly meetings of The Compassionate Friends. However, Spenser refuses to lie forgotten in his grave. Through the visions of others, Spenser communicates with Margaret so that she realizes she has not lost him after all."

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9781941237212

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Margaret Kramar's memoir is a testament to the pain and beauty of parenthood--and the vulnerability it requires. With crisp, unsentimental prose, Kramar draws the reader into her overturned world after her second-born son is diagnosed with Sotos syndrome; she learns he will not look, act, or learn like most other children. Spencer grows into a zestful and curious boy, with his own quirks, talents, and wisdom, and Kramar becomes his determined advocate and steadfast champion. After he begins school and gets involved with theater, she is only one of his many fans. Kramar is honest in her recollections--she is a narrator strong with love, but often bewildered by what fate had her take on. Spencer is realized a three-dimensional human being, sometimes frustrated with the difficulties of his disability, sometimes in love with the life he eagerly grasps. After his death, his devastated mother must once again abandon her previous expectations and dreams, and, with new insight and a fuller, wiser heart, learn to take joy in new ones. Laura Moriarty, Associate Professor University of Kansas, is the author of five novels including, The Chaperone (Riverhead Books 2013), and American Heart (HarperCollins, 2018). This book is a reminder that living with a most difficult and painful thing gives us choices. Making the right one makes all the difference. Margaret Kramar has written this story for all the right reasons. And no matter who you are, you will find yourself in these pages. Maryemma Graham, University of Kansas Distinguished Professor & Founder/Director, Project on the History of Black Writing. I glanced at the first page of Searching for Spenser and from that moment on, I did not want to put the book down. Our electricity went out early one morning while I was reading, so I went and found a flashlight, which imperfectly lit the pages as I continued to read. The book is compelling because Margaret Kramar is a gifted story teller, drawing us into her life. I grew to love the author because of her honesty, bravery and transparency. She does not give us a sugar-coated story, written by a perfect person with perfect answers. She gives us a real story about a person whose life did not go the way she planned. There were many times that tears came to my eyes and lumps rose in my throat, but over all this book is a tribute to a beautiful and loving world. This book is a masterpiece. I loved it. Dianne Lawson, Extraordinary Relationships through Astrology This is a deeply moving, humbling, beautiful and true account of the short journey of a very special little boy. Any parent dealing with a special needs child-and what child isn't special needs at some point-will run the gamut of emotions in reading this book. I sobbed, laughed out loud, prayed, was amazed, and sometimes angry. Because of this book, I was grateful for being able to have the opportunity to learn what purity of soul really means. Through Searching for Spenser, this little boy will continue to touch the hearts of others for years to come. Diane Rose Kramar doesn't hold back in sharing her life with the reader. She takes us by the hand and we walk through her days as mother, wife, friend and advocate. It is a journey fraught with difficult decisions, frustrating outcomes, intense sorrow and yet, a powerful love that weaves through the story driving her on to never stop caring and fighting for her son, Spenser. As a parent of a young child who went through long periods of medical treatment and lost her life to childhood cancer, I recommend this book to parents, caregivers and all others who wish to gain an understanding of advocating for a loved one. Bill Sowers

Author Information

"Margaret Rayburn Kramar is an educator and author whose memoir, Searching for Spenser, explores how she was transformed through the death of her disabled child. A graduate of Grinnell College, she received an M.A. in journalism from the University of Iowa. Subsequently employed as lifestyle editor for the Denison Newspapers, her work received awards from the Iowa Press Association Better Newspaper Contest and Herbert Bayard Swopes Memorial Awards. In 2012 she received a Ph.D. in English from the University of Kansas and taught English composition, drama and American literature. Previous to the Ph.D., she was employed for twenty years as a civil rights investigator by the Kansas Human Rights Commission. Her work has appeared in numerous anthologies and print and digital publications. A chapter from Searching for Spenser captured the first place award in the Kansas Authors Club Contest. She and her family live on a small farm in northeast Kansas where they produce organically grown fruits, vegetables and free-range eggs. Cover image by Nina Niebuhr, Shutterstock, Another Journey: ""Misty Flowers."""

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