Overview

Rapid technological advances, the establishment of large-scale biobanks, and the exchange of data across international boundaries raise a variety of questions for regulators struggling with the problem of how to govern such stores of information and the processes connected with them. Engaging with the pressing issues of privacy, consent, access to data, and benefit sharing, Principles and Practice in Biobank Governance draws together the latest empirical research from the UK, Europe, America, Australia and Asia to focus on these challenges. Current models of governance are critiqued, principles and policies are debated, and new models and theoretical frameworks are presented through this intellectually stimulating, informative volume. This truly international volume offers new insights from a range of disciplinary perspectives and will be essential reading for policy makers and scholars across a range of social sciences, including sociology, bioethics, law and social policy.

Full Product Details

Author:   Mark Stranger ,  Jane Kaye
Publisher:   Taylor & Francis Ltd
Imprint:   Routledge
Edition:   New edition
Dimensions:   Width: 15.60cm , Height: 1.90cm , Length: 23.40cm
Weight:   0.453kg
ISBN:  

9780754678250

ISBN 10:   0754678253
Pages:   316
Publication Date:   28 November 2009
Audience:   College/higher education ,  General/trade ,  Tertiary & Higher Education ,  General
Format:   Hardback
Publisher's Status:   Active
Availability:   In Print  
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Table of Contents

Reviews

'From empirical data to conceptual analysis, and from assessment of public opinion to recommendations for policy, Kaye and Stranger have managed to pack a lot into this edited volume that will please researchers, policy makers and lay readers alike. It is a much needed collection that lives up to its offer to provide principles and practice for biobank governance.' Eric M. Meslin, Indiana University Center for Bioethics, USA 'The governance of biobanks is a major ethical issue of our time. This volume combines the latest empirical findings with an international blend of scientific, ethical, legal and sociological expertise, resulting in a comprehensive critique of current practice and focused suggestions for future development. Helpfully jargon-free, it should be a major resource for biobank planners, funders, administrators, users - and participants.' Alastair Campbell, National University of Singapore, Singapore

Author Information

Jane Kaye is Wellcome Trust Fellow in Medical Law at the Ethox Centre, University of Oxford, UK Mark Stranger has taught sociology and worked as Senior Research Fellow and Executive Director at the Centre for Law and Genetics, University of Tasmania, Australia. He is the author of Surfing Life: Surface, Substructure and the Commodification of the Sublime. Mark Stranger, Jane Kaye, Dianne Nicol, Christine Critchley, Nadja Kanellopoulou, David E. Winickoff, Lukas Gundermann, Ulrich Stockter, Margaret Otlowski, Antonio Casado da Rocha, Ismael Etxeberria Agiriano, Kristien Hens, Kris Dierickx, R. Jean Cadigan, Arlene M. Davis, David Townend, Mark J. Taylor, Jessica Wright, Dita Wickins-Drazilova, Loane Skene, Atieh Zarabzadeh, R. William G. Watson, Geoff Bradley, Jane Grimson, Emmanuelle Rial-Sebbag, Aurelie Mahalatchimy, Dennis Chartier, Anne Cambon-Thomsen, Karine Bedard, Susan Wallace, Stephanie Lazor, Bartha Maria Knoppers, Martin Richards, Adrienne Hunt, Graeme Laurie, Trudo Lemmens, Lisa Austin, David Weisbrot.

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