Overview

"This book addresses the issues and challenges raised by the high-profile cases of Charlie Gard and Alfie Evans. The individual chapters, which complement one other, were written by scholars with expertise in Law, Medicine, Medical Ethics, Theology, Health Policy and Management, English Literature, Nursing and History, from the UK, Australia, Canada, the Czech Republic, France, Germany, India, Spain, Turkey and the USA. The following are among the key questions explored in the book. Is the courtroom an appropriate forum for resolving conflicts relating to medical futility in paediatrics? If so, should parental rights be protected by confining judicial powers only to cases where there is a risk of significant harm to the infant; or should the ""best interests"" test continue to be recognised as the ""gold standard"" for paediatric cases? If not, should mediation be used instead, but how well would this alternative method of dispute resolution work for medical futility conflicts? Further, should social media be deployed to garner support, and should outsiders who are not fully acquainted with the medical facts refrain from intervening? And, how are comparable situations likely to be managed in different countries? What lessons can be learned from them as well as from religious perspectives?"

Full Product Details

Author:   Kartina A. Choong
Publisher:   Trivent Publishing
Imprint:   Trivent Publishing
ISBN:  

9786156405005

ISBN 10:   6156405003
Pages:   329
Publication Date:   30 August 2019
Audience:   Professional and scholarly ,  Professional & Vocational
Format:   Hardback
Publisher's Status:   Active
Availability:   Temporarily unavailable  
The supplier advises that this item is temporarily unavailable. It will be ordered for you and placed on backorder. Once it does come back in stock, we will ship it out to you.

Table of Contents

"Foreword by Michael Redfern QC Preface by Kartina Aisha Choong Notes on Contributors INTRODUCTION. Charlie Gard and Alfie Evans: Their Medico-Legal Journeys, by Kartina A. Choong PART I. ISSUES AND CHALLENGES CHAPTER 1. The Vexed Question of Best Interests in Decisions Relating to Infants and Medical Futility, by Jo Samanta CHAPTER 2. Best Interests: The ""Gold Standard"" or a Gold Plating? Should Significant Harm be a Threshold Criterion in Paediatric Cases? by William Seagrim CHAPTER 3. Charlie's Law: Clarifying the Legal Standard to be Used in Medical Decision-Making for Children, by Sarah Sargent CHAPTER 4. Media Framing of ""Medical Futility"": Flaming the Debate?, by Kim McGuire CHAPTER 5. Resource-intense Treatments in a Resource-finite Environment, by Richard Wai Ming Law CHAPTER 6. Citizenship at the Discretion of the State: Public Law Issues Regarding Evans' Naturalisation, by Alejandra Boto CHAPTER 7. Contested Paediatric Palliative Care: A Church of England Perspective, by Brendan McCarthy CHAPTER 8. The Dynamics of Clinical Judgment, Religious Conventions and Parental Responsibilities: An Islamic Perspective, by Mahmood Chandia, Abdulla al-Shami CHAPTER 9. Do Parents Have a Right to Determine Where a Child Patient Dies?, by Lisa Cherkassky PART II. INTERNATIONAL PERSPECTIVES CHAPTER 10. Serving the Child's ""Best Interests"" in Australia, by Roslyn Jones CHAPTER 11. Medical Futility in Czech Paediatrics: At the Edge of Law, Bioethics, and Medicine, by Helena Krej?íková CHAPTER 12. The Application of End-of-Life Legislation to Minors in France, by Stephanie Rohlfing-Dijoux CHAPTER 13. Patient Autonomy and Best Interests in End-of-Life Cases: A German Perspective, by Peter Elsner CHAPTER 14. Gard and Evans: A Reflection on What Might Happen in India, by Abhay Vaidya, Sourabhi Sahakari CHAPTER 15. Medical Futility and Parental Paternalism in Turkey, by Banu Buruk, Berna Arda CHAPTER 16. If We Can, Must We? Just Whose Best Interests Are We Talking About? Perspectives from the USA, by Vincent F. Maher"

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Author Information

Kartina A. Choong is a Reader in Medical Law and Ethics at the University of Central Lancashire, having previously held academic appointments at the Universities of Durham, Reading and Leeds Metropolitan. She obtained her Law degree from the University of Cardiff before qualifying as a Barrister (Honourable Society of Lincoln's Inn, London). She holds Masters degrees in Healthcare Ethics and Applied Social Research from the University of Manchester, and in Islamic Studies from the University of Leeds. Her PhD in Medical Law was awarded by the University of Manchester. Her main areas of research interests, on which she has published widely, include medical futility, religiously- and culturally-sensitive end-of-life care, palliative care, medical mediation, professional liability, access to health records, consent and confidentiality. She is an Accredited Mediator and a Fellow of the UK Higher Education Academy.

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