Overview

Are you a carrier of Fragile X Syndrome? Do you have a child or loved one with Fragile X Syndrome? This honest and raw book will allow you to see through new eyes the challenges and joys of life in the Fragile X world. I don't have all the answers, but I'm writing this book for those that want to see someone walking the same road, finding joy in an arduous journey, and sharing experiences for others to learn from. This is the first book to go through what it is like to be a carrier of Fragile X Syndrome with all its challenges while also addressing the overwhelming task of raising special needs children at the same time. Within this book you will find: Tools to help in your marriage Special needs parenting tips Help to understand being a carrier of FXS Access to a list of my favorite products for kids and family Insights into IEPS, therapists, and ABA Real life experiences of day to day life Tips to help in finding Respite and Supported Living What's stopping you from stepping into my shoes to find common ground and helpful information to navigate Fragile X? Don't continue to be left in the dark or feel alone. No matter what mountains you are currently climbing, turn the page and begin a new journey to find joy in this crazy life of family, faith, and Fragile X.

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Kirsten Fowler has had a love for writing since a young girl and always kept a journal for expression, therapeutic value, and family history. Throughout high school and college she wrote and designed for several newspapers. She currently lives in a small town in Utah with her husband, Jeremy, her four children, Millie, Isaac, Eliza, and Evelyn as well as their dog, Luna. She is a jack of all trades, master of none. Kirsten dabbles in music, including singing, guitar, ukulele, fiddle, and, of course, the recorder. She also likes to draw and paint, whether on canvas or furniture. Dancing is a love of hers, but now simply enjoys waltzing around the kitchen with her husband or jamming out to tunes with her kids. When she really takes the time, she will even do needle work, and when she is feeling adventurous she loves indoor rock climbing. Otherwise, she is cleaning, cooking homemade meals, chasing her kids, serving in the community, and keeping in touch with family and friends the best she can.

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