Overview

A father's journey with a son with Sturge-Weber Syndrome Falling Off the Chair at Logan Airport is a combination memoir and parenting book. It is the life story of a little boy with Sturge-Weber Syndrome told from the perspective of his father. Intended to help other parents, caregivers, and health care professionals understand more about this particular orphan disease, the author explores an analytical, left-brain perspective in his quest for answers. Also, as a memoir, the book's stories detail the cycle of grief-analysis-acceptance, delving into the concept of uncertainty and how much we as humans can and cannot do to control the big things and little things in our children's lives. The book suggests that society enter into a conversation around how it can flex to accept and better care for those less fortunate. It is a personal story that spans New York and Singapore, from birth to childhood, from moments of grief to exhilarating joy. It is the story of a father and his son. A parenting book for fathers of special needs children.

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9789811499661

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