Testing Fate: Tay-Sachs Disease and the Right to Be Responsible

Author:   Shelley Z. Reuter
Publisher:   University of Minnesota Press
ISBN:  

9780816699964


Pages:   288
Publication Date:   17 August 2016
Format:   Paperback
Availability:   Temporarily unavailable   Availability explained
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Testing Fate: Tay-Sachs Disease and the Right to Be Responsible


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Full Product Details

Author:   Shelley Z. Reuter
Publisher:   University of Minnesota Press
Imprint:   University of Minnesota Press
Dimensions:   Width: 14.00cm , Height: 3.80cm , Length: 21.60cm
Weight:   0.272kg
ISBN:  

9780816699964


ISBN 10:   0816699968
Pages:   288
Publication Date:   17 August 2016
Audience:   General/trade ,  Professional and scholarly ,  General ,  Professional & Vocational
Format:   Paperback
Publisher's Status:   Active
Availability:   Temporarily unavailable   Availability explained
The supplier advises that this item is temporarily unavailable. It will be ordered for you and placed on backorder. Once it does come back in stock, we will ship it out to you.

Table of Contents

Contents Introduction: A Critical Historical Sociology of Disease Part I. Pathologizing the Other 1. Diagnosing the Genuine “Jewish Type”: Medical Racialism and Anti-Immigration Legislation in the United States 2. Governing Disease: Cultivating the Will to Health in Jewish Immigrants to the United Kingdom Part II. Imag(in)ing Difference 3. “Plainer Than Words Can Describe”: Medical Portraiture and the Visualization of a Jewish Disease 4. The Unethics of Looking at Disease–Disability: Online Representations of Tay-Sachs Part III. Paradoxical Biocitizenship 5. The Right to Be Responsible: Agency and Contemporary Carrier Screening Conclusion: Freedom, Exclusion, and Genetic Decision Making Acknowledgments Notes Bibliography Index

Reviews

Testing Fate illustrates how diseases become racialized, how racializing them supports political projects, and how the medical profession has been instrumental in racial formation. Dorothy Roberts, author of Fatal Invention: How Science, Politics, and Big Business Re-create Race in the Twenty-first Century Shelley Z. Reuter offers a thoughtful, thorough, and sophisticated analysis of themes of modern biocitizenship and belonging refracted through a historical case study of Tay-Sachs disease. Jonathan Kahn, Hamline University As she tells the fascinating and important story of Tay-Sachs disease, Shelley Reuter skillfully reminds us of the tight links connecting our concepts of disease to visions of belonging and otherness, selfhood and social responsibility. Steven Epstein, author of Inclusion: The Politics of Difference in Medical Research


Author Information

Shelley Z. Reuter is associate professor of sociology at Concordia University. She is the author of Narrating Social Order: Agoraphobia and the Politics of Classification.

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